The Village Project - supporting children of parents with mental illness in Austria

Research Group Village of the Ludwig Boltzmann Gesellschaft in cooperation with the Medical University Innsbruck

Children of parents with a mental illness (COPMI) often need additional supports to lead the happy and healthy lives they desire. In some cases though, those supports are either not available or not found by families, resulting in negative long-term outcomes for these children. This four-year research project aims to increase identification and strengthen formal and informal supports around children when their parents have a mental illness. This project will be co-developed with stakeholders and will implement and evaluate two practice approaches, focused on the child and on principles of collaborative care. The project utilizes a realist framework (as well as implementation science principles, and the theory of symbolic interactionism) and mixed-methodologies, and involves numerous data collection methods including: literature reviews, questionnaires, focus groups, interviews, and observations to determine the impact and benefits of providing increased supports for COPMI in Austria.

Timeline

Interviews/Focus groups with Stakeholder (April-June 2018)

  • Aim: Reflect current practices amoung child and adolescent services and support for children of parents with a mental illness
  • Establish collabration with stakeholders to: co-design interventions, train for screening of children at-risk, gauge interest to act as a "Village facilitator" coordinating support for children, take part in the evaluation of implemented interventions
  • Target group: Mental Health servicesfor adults, children and adolescents
  • Required time: 1x 1-2 hours interview or 2-3 hours focus group 

Co-Design of interventions (October-March 2019)

  • Aim: build on scoping of literature reviews, interviews and focus groups to co-develop interventions with stakeholders
  • Target group: experts and stakeholders identified in scoping review (parents, children, health care professionals, youth services, etc.)
  • Required time: ca. 6x 2-3 hours
  • Workshops (once a month) 

Implementation of interventions 
(September 2019-September 
2020 to June 2021)

  • Aim: To implement the new co-designed practice approaches in services, with training and mentoring support of interested professionals who may wish to enhance their practice to support COPMI in their work or in the community. Training and mentoring will be conducted by experts in implementation science, who will also work with services to help support the change process.
  • Target group: service professionals, community members and identified "Village facilitators".    
  • Training workshops: 3 x 2 hrs and monthly mentoring.

Evaluation (2021-2022)

  • Aim: measure impact of implemented interventions regarding their cost efficiency unsing interviews and surveys for evaluation
  • Target group: all stakeholders involved in the project

Governance Structure

STEERING COMMITTEE
LBG & Host Institution

Details

The Steering Committee (SC) consists of one representative each of the Ludwig Boltzmann Gesellschaft and the host institution. The Research Group Village Research Group is located at the Medical University of Innsbruck. The host institutions provide the research groups with the necessary infrastructure, support and networks. 

The SC meets twice a year and, based on the recommendations of the Advisory Board (AB), agrees to further activities of the LBG Research Group Village and to the course of the Research Program in Mental Health. 

ADVISORY BOARD
1x Open Innovation in Science expert
2x Experts by experience
3x Experts in the field (thereof one PI-Peer)

Details

The Advisory Board (AB) is an independent advisory body that evaluates the LBG Research Group on the basis of its research activities and ensures the (scientific) quality of research projects undertaken. The AB consists of an Open Innovation expert, two experts with lived experience (adolescents and/or young adults), and three experienced experts in the field of mental health (e.g. from the fields of psychology, psychiatry, social sciences, health sciences, etc.). These experts are also experienced in participative research and community involvement in research processes. Of their number, one expert may be a peer of the Principle Investigator. The Research Group & Relationship Manager and Principle Investigator report to the AB based on the following structure:

  • Research activities (scientific progress, youth and community involvement)
  • Strategy and budget (milestones and deliverables, projects with third-party funding)
  • Personnel and development
  • Communication and dissemination

The AB meets twice a year and reports to the SC on the progress and activities of the LBG  Research Group Village.

Research Group &
Relationship Manager

Details

The Research Group & Relationship Manager (RRM) supports the LBG Research Group Village with implementation of Open Innovation in Science activities, and particularly with community involvement in research activities, networking with cooperation and network partners, capacity building and management tasks (monitoring, reporting, budgeting). Twice each year, the RRM provides the AB with a progress report on relationship management and planned activities.

Competence Group
(Expert by experience)

Details

The Competence Group (CG) is made up of 6 experts by experience (children of parents with a mental illness), who advise and reflect with the Research Group on the planned measures and research activities. The purpose of this is to ensure affected community involvement throughout the research process. The CG meets once a month with the Research Group.

Principal
Investigator

Details

The Principal Investigator (PI) leads the LBG Research Group, consisting of Co-Investigators and a team in Austria; he or she is responsible for coordinating and handling research activities, and for budget and personnel matters. Twice each year, the PI provides the AB with a progress report on the Research Group and planned activities. 

Team and
Co-Investigators

Details

The Co-Investigators (CoI) form part of the core team and coordinate work packages as described in the research concept. CoIs remain anchored to their organization abroad and meet with fellow members of the LBG Research Group in Austria twice a year. Virtual conferences and meetings must be arranged in addition.

The team in Austria, consisting of doctoral candidates, students and other specialists, participate in implementation of the research concept and are supervised by the Principle Investigator. The Principal Investigator, the Co-Investigators and the Team together constitute the LBG DOT and Village Research Group. 

Cooperation- and Network Partner

Details

The LBG Research Group is embedded in a dynamic network that consists of academic and non-academic Cooperation Partners and Network Partners. 

Cooperation Partners are institutions with which separate cooperation agreements are concluded during the term of the Research Group; both financially and through their expertise, they contribute to the research program extended under the cooperation agreements. 

Network Partners are institutional application partners (NGOs, patient organizations, etc.) with which separate network partner agreements are concluded during the term of the Research Group; they permit access to patients, relatives, etc., but do not make a financial contribution to the research program.

Our Team

  • Jean Paul

    Principal Investigator

    Ludwig Boltzmann Gesellschaft Research Group Village, Medical University of Innsbruck 
    Innsbruck, Austria

    Details

    Jean is the PI of the ‘Village Project’ as part of the Mental Health Research Program at the Ludwig Boltzmann Geselleschaft based at the Medical University of Innsbruck. She is a social scientist and applied linguist in child health research with expertise in multiple analytical methods. She uses qualitative approaches to explore how people experience and are impacted upon by their interactions with the healthcare system. Before moving to Austria in January this year, she was a postdoctoral researcher at the Murdoch Children’s Research Institute in Melbourne, Australia. Her research analysed clinical-decision making regarding genomic testing for children. Jean completed her PhD in the area of healthcare communication and clinical genetics in 2015 and has lectured on topics related to research methods, genetic counselling, and applied linguistics in healthcare. She maintains international relationships with Australia and is an honorary fellow with The University of Melbourne (Department of Paediatrics) and Murdoch Children’s Research Institute (Genetics Education and Health Research Group). The current ‘Village Project’ will focus on the way in which the system identifies and responds to children who might be at-risk and need extra support when their parents have a mental illness. This project aims to improve identification of children at-risk and strengthen both formal and informal support around the child.

  • Ingrid Zechmeister-Koss

    Co-Investigator

    Ludwig Boltzmann Institute for Health Technology Assessment
    Vienna, Austria

    Details

    Ingrid is the deputy director of the Ludwig Boltzmann Institute for Health Technology Assessment in Austria and in this position and aims to strengthen the role of HTA in the Austrian health care system. Her research focuses on health economics. In particular, Ingrid addresses the question of efficient and rational use of resources and how to make a publicly funded health care system sustainable. In terms of method, she is an expert in economic evaluation which deals with the relationship of costs and effectiveness of interventions. Apart from research Ingrid has worked in the field of biomedical sciences in a hospital and as a health economist in the Austrian social health insurance. Hence, she has knowledge on processes in within providers, payers and decision makers in health care.

    An important contribution in all stages of the ‘village project’ will be Ingrid's knowledge on the Austrian health and social care system and on the mental health care structures in particular. She is responsible for the participatory process for developing the support programmes including stakeholders, most importantly people with lived experience. Her knowledge on methods in HTA, in particular the know-how on economic evaluation will contribute to the literature reviews and to the evaluation of the support programmes that we develop in the project.

  • Melinda Goodyear

    Co-Investigator

    School of Rural Health, Monash University
    Melbourne, Australia

    Details

    Mel is a researcher in the field of children of parents with a mental illness (COPMI) since 2003. She has over 30 peer reviewed publications in the field and received over $6M in funding to research the needs of families, parents and children where a parent has a mental illness and substance abuse issues. More recently Melinda has focused her work on engaging government and service providers in translation to practice strategies for adult mental health and social care systems of care to better meet the needs of parents with mental illness and their children. Her work has led to the development practice guidelines for the health and welfare system to address the impact of mental illness, trauma, drugs and alcohol, and gambling issues in families. Her most recent project is a Victorian Government funded large randomized control trial of the Let’s Talk About Children intervention that aims to reduce the intergenerational risk of mental illness for parents with mental illness and their children. Melinda is currently the sub-group chair of the Prato International Research Collaborative on Systems Change Worldwide for COPMI, and co-chair of Let’s Talk Worldwide aimed to address international challenges integrating Let’s Talk About Children into clinical practice worldwide. Melinda has recently commenced a joint role with the Parenting Research Centre as a Senior Implementation Specialist, supporting organisations to enhance their capacity to support parents in the care of their children, particularly when there is family adversity. Melinda will lead the implementation work package for the Village project, helping to understand the needs of Austrian care system and supporting a co-design and implementation support approach to help integrate the SENSE and CVA approaches into practice.

  • Annette Bauer

    Co-Investigator

    Personal Social Services Research Unit (PSSRU), London School of Economics and Political Science
    London, UK

    Details

    Annette has been a researcher at the PSSRU at LSE for the last seven years. PSSRU is a research unit led by Martin Knapp, which conducts high quality research on health and social care to inform and influence policy, practice and theory. Her research is focused on the evaluation of the short- and long-term costs and outcomes of preventative interventions in (mental) health and social care. Annette's main research interests includes perinatal mental health; in her research she examined the costs of mental illness during this time and cost-effectiveness of interventions, which included the long-term impact the illness has on children. Other areas of Annette's research include: community development; third sector; parenting; learning disabilities; dementia; integration between health and social care. Over the past four years Annette has been working part-time as an economist for the National Collaborating Centre for Social Care, a partnership with PSSRU, which was funded by the National Institute for Health and Care Excellence (NICE) to develop national practice recommendations in social care. In addition to (economic) evaluation methods, her main interests are the translation of research into policy and practice. This interest leads back to earlier career experiences: Before becoming a researcher, Annette was working in managerial roles for the (mental) health and social care system in England as well as in a consultancy role for hospital management in Germany.

    Annette is leading the work package that is concerned with the evaluation of the practice approaches that will be co-developed with local stakeholders during the course of the project. The evaluation will be taking a realist approach in order to understand what works for whom, under which conditions and why. Annette is particularly looking forward to the exciting challenge of working every step of the process as part of an international team on research and practice approaches that respond to local needs in Austria.

  • Hanna Christiansen

    Co-Investigator

    Department of Clinical Child and Adolescent Psychology, Philipps-University Marburg
    Marburg, Germany

    Details

    Hanna is a researcher of clinical child and adolescent psychology, as well as in the field of children of parents with a mental illness (COPMI). She has over 60 peer reviewed publications and received over €7M in funding to research needs of children and adolescents with mental disorders, and especially of families, parents and children where a parent has a mental illness. Hanna is currently the PI of the “Children of Mentally Ill Parents At Risk Evaluation” (COMPARE) that compares the effects of parental cognitive behavioral therapy (CBT) on the children to CBT plus the Positive Parenting Program (PPP) in order to establish incremental effects of supportive parenting above and beyond CBT alone. Within “The Village” research group, Hanna is one of the Co-Is, especially supporting the subprojects on giving the children a voice and dissemination of the research activities.

    In her teaching, Hanna also focuses on COPMI and on how to address psychological problems of children and adolescents in a child friendly way. Together with students of psychology and the fine arts, she started a children’s picture book series by Hogrefe publishers and the children of parents with a mental illness are one of the topics.

  • Batool Fatima

    Co-Investigator

    Human Development Programme, Aga Khan University
    Karachi, Pakistan

    Details

    Batool is a clinical psychologist and public health professional. She has taught at Institute of Professional Psychology, Bahria University Karachi and was Assistant Director Research and development at the Pakistan Institute of Learning and Living, where she led and supervised research conducted in collaboration of various international agencies. She was a lead investigator for a Grand Challenges Canada mental health seed grant which is now being scaled up. Her areas of interest include women’s, child and adolescent mental health services. She was the technical person for Voluntary Counseling and Testing project of Marie Stopes Society, which was funded by Global Funds to fight AIDS, TB and Malaria (GFATM) and focused on HIV counseling and intervention for youth. This program had a nationwide reach and was implemented with the partnership of local organizations.

    She has 15 years of experience in designing interventions, providing supervision and evaluation. Besides that she has also been providing counseling and assessment services for women, children and young people.

    Batool will lead the scoping work package in the village project with Ingunn to generate the knowledge and conceptual frameworks to inform and to be tested in WP4, 5 and 6. This will include the development of draft logic models and summaries of evidence that inform the development of the two practice approaches, SENSE and CVA.

  • Ingunn Olea Lund

    Co-Investigator

    Department of Mental Disorders, The Norwegian Institute of Public Health
    Oslo, Norway

    Details

    Ingunn Olea is a senior researcher at the Department of for Mental Disorders at the Norwegian Institute of Public Health. She has a Masters in Psychology from the Norwegian University of Science and Technology and a PhD from the Medical Faculty at the University of Oslo, and she spent one year in the US as a visiting Fulbright scholar. Her main research interests are prenatal exposure to alcohol, illegal drugs and prescription drugs and child outcomes; and parental mental health and child outcomes. Ingunn Olea has published extensively in the COPMI field and contributed the development of guidelines for the World Health Organization for the identification and management of substance use and substance use disorders in pregnancy. Currently, she mainly conducts epidemiological COPMI research, and she is the PI for a large-scale combined survey and registry study, which includes about 8700 parent-child triads, investigating the putative long-term associations between parental risk factors and various child mental health and social outcomes in early adulthood. Ingunn Olea will contribute to several parts of the project; and a main contribution will be to the scoping work package.

  • Rosanna Buchauer

    Project Coordinator

    Ludwig Boltzmann Gesellschaft Research Group Village, Medical University of Innsbruck 
    Innsbruck, Austria

    Details

    About me: I grew up in a well sheltered village and so I often recognize the desired structures in the symbolic Village project.

    My background lays in the economic field, I have completed the master's program Management, Communication and IT at the Management Center Innsbruck. During my studies and afterwards I already gained experience in event management and also organized many sports events with children. In addition, I was increasingly involved in digital marketing and project management. As part of my master's thesis, I examined social and media influence on sustainable travel in Tyrol. In the Village project, I bring in my experiences and want to return and share parts of my happy childhood.

    My role: As project coordinator, I work closely together with the principal investigator and the co-investigators. I take a look at the project from a bird's perspective and thus I have an overview of the current processes, as well as planned milestones. I also organize and support the various events that take place during the project. On the one hand events for the informational exchange with our partners and on the other hand public events in order to actively involve society and Tyroleans in our research.

  • Daniel Purtscheller

    PhD Student

    Ludwig Boltzmann Gesellschaft Research Group Village, Medical University of Innsbruck 
    Innsbruck, Austria

    Details

    Daniel studied psychology at the University of Innsbruck and is now enrolled in the doctoral program. When learning about Sigmund Freud's concept of the human conscious and unconscious mind and Ernest Becker's analysis of the human need to cope with death awareness, he started to examine the relationship between the human capacity to create meaningful world- and self-views, death awareness, negative affect, and distress. Following cognitive emotion theories, hedonic motivation theories, and, specifically, terror management theory, he assumes perceived personal mattering to have the power to reduce negative affect and to ameliorate crisis of meaning. This line of thought is also the cornerstone of his dissertation thesis. Children of a parent with a mental illness (COPMI) may sometimes feel invisible to their social environment regarding their own needs and motivations. Acknowledging their individual needs and motivations and providing social support may increase COPMI's sense of personal mattering and enhance subsequently their emotional wellbeing.

  • Franziska Huck

    PhD Student

    Ludwig Boltzmann Gesellschaft Research Group Village, Medical University of Innsbruck 
    Innsbruck, Austria

    Details

    Franziska has studied Social and Cultural Anthropology at the University of Vienna. She was always very much interested in discovering the culture and life's of people. Her research interest is the participant observation and carrying out of interviews. Franziska is very happy to be part of the village team. Her aim is to improve the life´s of many children.

  • Lisa-Marie Dobener

    PhD Student

    Department of Clinical Child and Adolescent Psychology, Philipps-University Marburg
    Marburg, Germany

    Details

    After graduating in Educational Science with the major subject social and rehabilitation pedagogy and the minor subjects psychology and comparative cultural studies at Philipps-Universität Marburg, I'm doing the 'Marburger Modell' now, which containes the doctorate and the clinical training for becoming a child and adolescent psychotherapist. 

    In theoretical lectures as well as in seminars and projects regarding quantitative and qualitative social research it turned out that I enjoy scientific work a lot, which motivated me to get more involved into research. During my studies and my diverse socio-educational practical expierence and internships I was always interested in structures of social injustices and discrimination, what impact those and critical life events have on individuals and what kind of resiliences people have to cope with challenging situations. 

    For the purpose of early prevention I think particulaly in the life stages of childhood and youth it is important to always improve treatment concepts and social services which motivates me to make research fertile for practice as well as learn out of the practical expierences for further research. 

  • Julia Kapferer

    Student Assistant

    Ludwig Boltzmann Gesellschaft Research Group Village, Medical University of Innsbruck 
    Innsbruck, Austria

    Details

    About me: After writing my bachelor thesis on the subject of "Communication in School Social Work" I completed my teacher training for the “Neue Mittelschule”, I subsequently graduated with a bachelor's degree in social work. Through several internships within the adult and youth sector, as well as my work in a low-threshold temporary living possibility for adolescents - the “chill out”, I had the opportunity to gain new experiences. Especially in social work, networking and communication are very important components that are indispensable in professional work and in dealing with people.

    My role:As a student assistant I support the researchers in all possible areas, such as transcribing interviews, conducting interviews, evaluating interviews, literature research, translating, public relations and much more. By supporting all the researchers, we get a very good overview of the research process and are intensively familiar with the subject matter.

  • Johanna Krönner

    Student Assistant

    Ludwig Boltzmann Gesellschaft Research Group Village, Medical University of Innsbruck 
    Innsbruck, Austria

    Details

    Grown up in a family in which everyone is active in a social professional field, socio-psychological topics and in particular the interest for psychological well-being shaped me early. I began my bachelor's degree in psychology at the Leopold Franzens University in Innsbruck in autumn 2014. During my studies I gained experience relevant to the subject, such as working with physically and mentally handicapped children and an internship in a psychosomatic clinic. I was particularly enthusiastic about my bachelor thesis, in which I conducted a qualitative study on the topic of "experiences of a homeless person's foreignness" and thus discovered my interest in qualitative research. This is how I came to LBG's Village project. From autumn 2018 I will study Psychology in the Master's programme at the University of Innsbruck - in addition to my work for the Village-project.

    My role:

    As a student assistant, I am responsible for conducting, transcribing and analysing interviews, literature research and translations, among other things. All in all, a series of diverse tasks that support researchers in their work and thus make an important contribution to the "Village" research project.

  • Anna-Elena Pinggera

    Student Assistant

    Ludwig Boltzmann Gesellschaft Research Group Village, Medical University of Innsbruck 
    Innsbruck, Austria

    Details

    About me:After completing my training as a kindergarten teacher, I decided that I would like to help to shape the structural framework in which children grow up and mature. This led me to study non-profit, social and healthcare management at the Management Center Innsbruck. In the course of my studies, I also gained valuable experience in internships in the province of Tyrol, in the Youth-Women-Family department, and in foreign aid at Caritas Tirol. I completed my bachelor's degree with a thesis on the introduction of a sugar tax in Austria. In order to answer my research question, I asked Austrian experts in addition to literature research and field reports from other countries. Currently I am in the Master study Strategic Management & Law. Before joining the Village research project, I spent six months at SOS Children's Village International coordinating a project of the six major child organizations. 

    My role:As a student assistant I support the researchers in all possible areas, such as transcribing interviews, conducting interviews, evaluating interviews, literature research, translating, public relations and much more. By supporting all the researchers, we get a very good overview of the research process and are intensively familiar with the subject matter.

  • Elena Seis

    Student Assistant

    Ludwig Boltzmann Gesellschaft Research Group Village, Medical University of Innsbruck 
    Innsbruck, Austria

    Details

    About me: During my psychology studies I gained practical experience working with children of mentally ill parents in a children's village. I have observed the attachment behavior of children who for various reasons can no longer live with their biological parents and therefore experience a frequent change of caregivers. In addition to this qualitative approach, I conducted quantitative research projects as part of my studies. In our research project "Village" I can contribute my knowledge in these areas and combine them with my interest in social science and psychological research. 

    My role: My main tasks include assisting in data collection and evaluation, translation work, literature research and public relations.

  • Raphaela Kaisler

    Research Group and Relationship Manager

    Ludwig Boltzmann Gesellschaft, Open Innovation in Science Center
    Vienna, Austria

    Details

    Raphaela is a psychologist with a multidisciplinary background in molecular biology and science communication. As a scientist, she worked in basic research in the field of cancer research, neuroscience and social psychology before she focused on project management in research organizations. Additional training in the psychosocial field and work with children and adolescents form the basis for Raphaela's interface function at the Ludwig Boltzmann Society.

    As a Research Group and Relationship Manager, Raphaela is the interface to the Ludwig Boltzmann Society and supports the research group in establishing a partner network and bridging science and society in research processes. The focus is on engaging the public, experts-by-experience in the field of mental health and other key stakeholders in research activities.

  • Competence Group

    Experts with lived experience

    Ludwig Boltzmann Society, Vienna, Austria

    Details

    The Competence Group, consisting of 6 experts by experience in the mental health field, advises and reflects with the Research Group on the planned measures and research activities. The purpose of this is to ensure community involvement and a voice for patients and their families throughout the research process. The CG meets with the Research Group once a month. 

Work Packages

  • WP 1: MANAGEMENT

    • project management & communication
    • set up project structure
    • monitor milestones
    • organize joint stakeholder & researcher conference
  • WP 2: THE CHILD‘S VOICE

    ie, linguistic microanalysis of communicative interactions involving children. Co-participation with children – photo voice, roundtable discussions

    Details

    Work package 2: Child's voice

    This WP will identify the ways in which children currently, and wish to, participate in discussions about their needs, from child, service providers, and parent perspectives. This WP will uphold the project’s underpinning philosophy to hold the child at the centre of their own care, and to listen and support them in identifying their own formal and informal support network.

    The importance of ‘assent’ and supporting children to develop their own ‘voice’ in healthcare is increasingly acknowledged within child health research. This follows the United Nations Convention on the Rights of the Child, acknowledging the ethical imperative and rights for children to be provided with their own health information. Concepts of ‘child voice’ and child-centred communication will contribute to developing practice approaches to improve identification and strengthen child-focused support for children who have a parent with a mental illness.

    We will undertake narrative literature reviews of both paediatric healthcare interactions, and studies examining the concept of ‘child voice’. This will inform subsequent development and analysis within the broader project. We will conduct a series of sociological and linguistic micro-analyses across collected project data in Austria, supplemented by additional observational data. This project has the support of Professor Lesley Stirling, School of Languages and Linguistics, The University of Melbourne, Australia.

    Findings will provide opportunities to educate professionals in appropriate ways to engage and support COPMI to become more communicatively active in conversations with adults about their needs. This WP will importantly address knowledge gaps in this area and inform practice change.

  • WP 3: SCOPING

    Identify:

    • Existing evidence & practice & current state of collaboration in Austria (eg, practice, recommended approaches, gaps, barriers….)
    • active ingredients (eg, focus on the patient, trust)
    Details

    Work package 3: Scoping

    This Work Package will generate the knowledge and conceptual frameworks to inform and to be tested in co-development, implementation and evaluation. In this phase, literature reviews will be conducted, and knowledge via stakeholders will be gathered to understand and describe: a) current practice, recommended practice and gaps in relation to the identification of children with mentally ill parents (COPMI), and collaborative care that listens to the child’s voice 2) the (unmet) needs for COPMI; 3) what works for whom and when, is cost-effective and the mechanisms (active ingredients) and contextual factors that can inform the development of logic models and the development of approaches. Stakeholders in the community, from services and families will be consulted using interviews, focus groups, desktop research and document review, and scoping reviews of the literature. Logic models will be drafted with the help of literature reviews and stakeholder interviews, in line with a realistic approach; this work will inform WP4 where the logic model will be co-developed and agreed with stakeholders.

  • WP 4: CO-DEVELOPMENT

    • Co-development of screening & collaboration approaches
    • present scoping summary
    • draft practice approaches
    • develop training approach
    Details

    Work package 4: Co-development

    This work package has three aims. Firstly, we will develop practice approaches and tools to identify children with mentally ill parents (COPMI) and to support them in everyday life by building networks among formal and informal support systems in Tyrol. Secondly, training material for implementing the practice approaches will be developed and thirdly, key-indicators for evaluating the practice approaches will be defined. The development of the practice approaches and evaluation indicators will be done in a participatory manner (co-design) involving representatives of stakeholders and particularly including people with lived experience.

    To this end we will facilitate a series of design workshops with stakeholders at the study site to develop the components of the practice approaches based on the results from the scoping (WP 3). Qualitative methods will be applied to analyse the data collected throughout this WP.

  • WP 5: IMPLEMENTATION

    • Training and implementation approaches
    • NIRN approach (exploration, installation, pre-implementation)
    • target group: COPMI 0-18 years of age
    Details

    Work package 5: Implementation

    This work package aims to translate the co-design approach (from Work package 4) into practice. The package will work with service providers and interested stakeholders to train and support the delivery identification of COPMI approaches, as well as the village approach aiming to establish and enhance informal and formal support networks around the child. This work package draws on what is known from the field of implementation science, which aims to assist in the translation of new evidence based interventions into routine delivery by service providers. In Tyrol, a number of interested service providers will be trained and mentored in the identification approach, and interested village agents will be trained and mentored in the support network approach that focuses on the child’s voice. A significant part of this work package will be to support a staged development of training and coaching support. It will involve extensive exploration of the context and a review of best practice in the literature (Work package 3), as well a preparatory stage to co-develop an approach that considers the context and the potential barriers, and develops strategies with key stakeholders to assist with establishing training supports for service providers in Tyrol (Work package 4). An evaluation (Work package 6) will be undertaken during this phase. Both an understanding of the implementation process as well as the impact of the new approaches on practitioners and families will be explored. Qualitative and quantitative methods will be applied to analyse the data collected throughout this WP.

  • WP 6: EVALUATION

    Formative (feasible, appropriate, and acceptable), Process (intended implementation), Outcome (cost-) effectiveness, Impact (ultimate goals)

    Realist Evaluation

    Details

    Work package 6: Evaluation

    The main objective of this WP is to generate evidence as to whether the practice approaches we developed were successfully implemented (process evaluation) and whether they led to positive outcomes for children and their families (outcomes evaluation). In addition, we are also evaluating the costs of implementing those practice changes and changes in resource use (cost evaluation). The evaluation will be carried out using a realist approach. That means we will not only be able to understand whether positive outcomes were achieved but also for whom, under which conditions and how. This kind of knowledge can be particularly useful in order to derive recommendations for rolling out an intervention in other localities.

    The programme theory and logic models (developed in WP3, WP4) will inform the framework of evaluation. In terms of the process evaluation, we will measure things like: professionals trained; parents and children identified; children referred; as well as awareness and behaviour change in professionals. Outcomes as well as costs will be measured in a comparative study design, which will compare two strategies: one will be about identifying parents and their children (and providing them with additional information), the other one will be about identifying them and offering additional support for the children (in addition to information). What will be measured will be agreed with stakeholders during the scoping and co-developing phase (WP3, 4).

  • WP 7: DISSEMINATION OF RESULTS

    ie, conferences, public media, open access publications, website, patient-stakeholder-researcher conference

    Details

    Work package 7: Communication and Dissemination

    The objectives of this work package are: (1) to gain ownership and buy-in for the research among stakeholders throughout the different research phases, and (2) to achieve impact at an individual, community, regional and (inter-) national level; this includes impact in regards to research, practice and policy. All communication and dissemination will be designed sensitively, with the aim to reduce stigma as a potential barrier to the realization of the project. To achieve at this, a range of open-day forums will be organized throughout the project to which a wide range of stakeholders will be invited; this will include: families, service managers, politicians, researchers, commissioners, practitioners (including clinicians, social workers, school teachers). Events will inform stakeholders about the research and include educational components; for example, keynote speakers might talk about latest evidence and good practice; policy makers and influencers (including patient and professional associations) will be engaged via Ludwig Boltzmann Gesellschaft; partnerships will be built and managed with organisations and projects that have similar aims and work with similar target groups such as “Frühe Hilfen” and “Communities that Care”; ongoing information will be made available via a project specific website; a range of innovative communication tools (e.g. video, infographics) will be developed, which will be disseminated together with research reports throughout the project to promote the research aims, methods and findings; peer reviewed papers will be produced and published in recognized journals and a joint researcher-stakeholder conference is planned at the end of the project to communicate major findings to the wider community.

  • OBJECTIVES

    • Collaborative child focus practice;
    • improved child development & well-being;
    • enhance cost-effectiveness through collaborative practice